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 To promote less restrictive alternatives to guardianship and effect long-term changes in North Carolina’s guardianship system.

Why Rethink Guardianship?

Recent public guardianship information collected by DAAS reveals that no longer are elders the majority of people under guardianship in North Carolina. Public guardians serve more than 5,000 adults in the state. Nearly 3,000 (56%) of these adults are younger adults (age 18-59 years old). The majority of these younger adults (86%) have a primary diagnosis of intellectual and other developmental disabilities (I/DD) or mental illness.

Of older adults 60-84 years, who comprise 37% of adults served by public guardians, almost half (48%) have a primary diagnosis of I/DD or mental illness. The number of younger adults with I/DD, mental illness, and traumatic brain injury is expected to grow. Factors such as aging out of foster care, aging parents no longer able to care for adult children, effects of the Olmstead decision and North Carolina’s voluntary settlement agreement with the US Department of Justice, and veterans who have suffered traumatic brain injury account for some of this expected growth.

Current guardianship policies and procedures are not always sensitive to the unique needs of adults with intellectual and other developmental disabilities.

Our initiative aims to inform future policies and procedures for adult guardianship. That way, the institution of guardianship can better meet the needs of all of North Carolina’s vulnerable adults.


The workgroup is modeled on WINGS – Working Interdisciplinary Networks of Guardianship Stakeholders, which employs the collective impact model for social change. It will continually assess and evaluate North Carolina’s guardianship system to determine when formal or informal adaptations are needed. This includes examining the use of guardianship alternatives such as advance directives, supported decision-making, and self-determination to avoid the appointment of an individual or public entity as guardian. The workgroup will also investigate ways to provide support and resources to private and public guardians to enable the least restrictive guardianship possible.

Core Concepts and Basic Principles

When looking at guardianship and the principles that should govern, Rud Turnbull, JD, LLD, has reminded us that there are Core Concepts and Basic Principles rooted in federal law and the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). These concepts and principles recognize that the rights of individuals with disabilities are equal to those of persons without disabilities under the law (UNCRPD; Americans with Disabilities Act, other federal and state laws).